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Julietti de Andrade, Marilda Lopes Ginez de Lara, The social role of knowledge organization in Evidence Based Health in:

International Society for Knowledge Organziation (ISKO), Marianne Lykke, Tanja Svarre, Mette Skov, Daniel Martínez-Ávila (Ed.)

Knowledge Organization at the Interface, page 537 - 539

Proceedings of the Sixteenth International ISKO Conference, 2020 Aalborg, Denmark

1. Edition 2020, ISBN print: 978-3-95650-775-5, ISBN online: 978-3-95650-776-2, https://doi.org/10.5771/9783956507762-537

Series: Advances in Knowledge Organization, vol. 17

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Julietti de Andrade – UFF – Fluminense Federal University, Brazil Marilda Lopes Ginez de Lara – USP - São Paulo University, Brazil The Social Role of Knowledge Organization in Evidence Based Health Abstract: Evidence based health is a form of knowledge production that aims to provide the best information for decision-making. The knowledge produced in Evidence based health, such as systematic reviews and technicalscientific opinions should be structured in such a way that clarifies the steps taken in the search for information and its retrieval, thus allowing access to the studies, which can be done by adopting knowledge organization principles, instruments, and methods. Through planning and systematization of information search and retrieval processes, knowledge organization has fulfilled its social role inasmuch as it has helped develop better approaches to patient care by managing health resources. As a result, this study presents an information search and retrieval methodology to build best practices within health technology assessment in the context of Evidence Based Health care. 1.0 Introduction The goal of this study was to highlight the social role of knowledge organization (KO) in Evidence Based Health (EBH). The meaning of the term “social” here refers to peoples’ well-being and cooperation for a good life in society. The use of mapping among knowledge organization systems (KOS) can contribute to peoples’ well-being by being part of the production of scientific knowledge, whose purpose is to offer the best health technologies, according to patients’ needs and available resources. The role of KOS in this scenario is to provide a larger sample of terms and synonyms derived from the vocabulary of various discursive communities to develop sensitive search strategies, allowing for retrieval with higher recall and relevance. The main question that drives this analysis was: can the planned and systematized information search and retrieval process be considered part of the evidence in the context of EBH? This study presents a proposal for using KOS mapping when building sensitive search strategies for searching and retrieving health data. The goal was to systematize and rationalize the search process to support healthcare management and care, especially in decision-making processes in the context of health technology assessment (HTA). This assessment is based on the principles of quality and excellence of the connections among research, policy and management in all its phases (incorporation, diffusion, abandonment), in due time (Brazil 2013). The health technology assessment process, which is part of EBH, provides healthcare managers with support to make coherent and rational decisions about the inclusion of health technologies (Brazil 2011). Health technology assessment contributes to the well-being of people by enabling the provision of health technologies that are appropriate to the needs of patients. Questions regarding the best medicine, surgical technique, or prosthesis for a group with particular characteristics such as age, sex, place of residence, and living conditions and habits are some of the decisions made routinely in hospitals, and these directly interfere with the quality of life of thousands of people. Systematic reviews (SR) and technical-scientific opinions (TSO) support HTA. Systematic reviews and TSOs are examples of evidence that presents knowledge that can 538 enhance the decision-making process, making it adequate to resource management and the well-being of patients. SRs are a “method of scientific investigation that uses the planning and gathering of original studies, synthesizing the results of multiple primary investigations” (Universidade Federal de Santa Catarina 2010, 27). An essential part of planning an SR is carrying out a literature review (Brazil 2012). In contrast, TSOs do not require such an extensive and comprehensive literature review and are quicker to prepare, representing a systematic and comprehensive account of the knowledge that can be found (Brazil 2011). The structure of SRs and TSOs lies in the presentation of the information search and retrieval process (Brazil 2011; 2014); thus, they can be considered part of the process of construction of evidence because one of its elements is its reproducibility. The evidence describes the research problem, the consulted sources and KOs, and the sensitive search strategies used in each source, with due justification. The methodology proposed by Andrade (2015) and Andrade and Lara (2019) highlights the role of information exchange between specialists in the field of health and KO in defining and understanding research problems and mapping terms and their synonyms while using the Library Medicine’s Metathesaurus. The search, retrieval, systematization, and presentation of search results to healthcare experts are also included in the referred methodology. The search strategy model makes it possible to retrace the steps of the search and identify changes in it. The social role of KO in EBH is the use of the information search and retrieval methodology with mappings among knowledge organization systems when creating sensitive search strategies. These offer a greater number of synonymous terms, from different thesauri, terminologies, bibliographic classifications, billing lists for health services, which were built according to local needs and the languages of specialties from different discursive communities. 2.0 Methodology This was an exploratory and bibliographic study. We adopted the theoreticalmethodological approaches of the organization and retrieval of information and knowledge (Hjørland 2008; Lara 2013) and of evidence based healthcare (Atallah 2004; Universidade Federal de Santa Catarina 2010; Brazil 2011; 2012; 2014). Two experiments were conducted: a) a case study in orthopedics and traumatology and b) an evaluation of the National Library Medicine Metathesaurus that enables the simultaneous search of terms in several KO systems (Andrade 2015). The case study aimed to build generalizations about the identification of research problems, the search and retrieval of information from databases, focusing on mapping terms and concepts to develop search strategies. To assess the metathesaurus, the researchers tried to identify the ways how the metathesaurus functions, its use and results. For this analysis, researchers used the ISO 25964-1/2:2011, Information and documentation – Thesauri and interoperability with other vocabularies, which offers recommendations to identify and classify equivalences between terms (International Standard Organization 2011a; 2011b). 539 References Andrade, Julietti. 2015. Interoperabilidade e Mapeamentos entre Sistemas de Organização do Conhecimento na Busca e Recuperação de Informações em Saúde: Estudo de Caso em Ortopedia e Traumatologia. Ph.D. dissertation, São Paulo: University of São Paulo. Andrade, Julietti and Marilda Lopes Ginez Lara. 2019. “Proposta de Metodologia para Busca e Recuperação de Informações em Saúde: Uso de Mapeamentos entre Sistemas de Organização do Conhecimento (SOC) na Construção de Estratégias de Busca Sensibilizadas.” INCID 10: 1-25. Atallah, Álvaro Nagib. 2004. “A Incerteza, a Evidência e a Ciência.” Diagnóstico e Tratamento 9, no. 1: 27-28. Brazil. 2011. Ministério da Saúde. Secretaria de Ciência, Tecnologia e Insumos Estratégicos. Departamento de Ciência e Tecnologia. Diretrizes Metodológicas: Elaboração de Pareceres Técnico-Científicos. 3. ed. Brasília: Ministério da Saúde. Brazil. 2012. Ministério da Saúde. Secretaria de Ciência, Tecnologia e Insumos Estratégicos. Departamento de Ciência e Tecnologia. Diretrizes Metodológicas: Elaboração de Revisão Sistemática e Metanálise de Ensaios Clínicos Randomizados. Brasília: Ministério da Saúde. Brazil. 2013. Ministério da Saúde. Rede Brasileira de Avaliação de Tecnologias em Saúde. O Que São os Nats? http://rebrats.saude.gov.br/institucional/nats. Brazil. 2014. Ministério da Saúde. Secretaria de Ciência, Tecnologia e Insumos Estratégicos. Departamento de Ciência e Tecnologia. Diretrizes Metodológicas: Elaboração de Revisões Sistemáticas e Metanalise de Estudos Observacionais Comparativos sobre Fatores de Risco e Prognóstico. Brasília: Ministério da Saúde. Hjørland, Birger. 2008. “What Is Knowledge Organization? (KO)” Knowlegde Organization 35: 86-101. International Standard Organization. 2011a. ISO 25964: Thesauri and Interoperability with Other Vocabularies. Part 1: Thesauri for Information Retrieval. Geneve: International Standard Organization. International Standard Organization. 2011b. ISO 25964: Thesauri and Interoperability with Other Vocabularies. Part 2: Interoperability with other Vocabularies. Geneve: International Standard Organization. Lara, Marilda Lopes Ginez. 2013. “Documentary Languages and Knowledge Organization Systems in the Context of the Semantic Web.” Transinformação 25: 145-150. Universidade Federal de Santa Catarina. 2010. Centro de Ciências da Saúde. Saúde Baseada em Evidências. Especialização em Saúde da Família – Modalidade a Distância. Santa Catarina: Universidade Federal de Santa Catarina.

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Abstract

The proceedings explore knowledge organization systems and their role in knowledge organization, knowledge sharing, and information searching.

The papers cover a wide range of topics related to knowledge transfer, representation, concepts and conceptualization, social tagging, domain analysis, music classification, fiction genres, museum organization. The papers discuss theoretical issues related to knowledge organization and the design, development and implementation of knowledge organizing systems as well as practical considerations and solutions in the application of knowledge organization theory. Covered is a range of knowledge organization systems from classification systems, thesauri, metadata schemas to ontologies and taxonomies.

Zusammenfassung

Der Tagungsband untersucht Wissensorganisationssysteme und ihre Rolle bei der Wissensorganisation, dem Wissensaustausch und der Informationssuche. Die Beiträge decken ein breites Spektrum von Themen ab, die mit Wissenstransfer, Repräsentation, Konzeptualisierung, Social Tagging, Domänenanalyse, Musikklassifizierung, Fiktionsgenres und Museumsorganisation zu tun haben. In den Beiträgen werden theoretische Fragen der Wissensorganisation und des Designs, der Entwicklung und Implementierung von Systemen zur Wissensorganisation sowie praktische Überlegungen und Lösungen bei der Anwendung der Theorie der Wissensorganisation diskutiert. Es wird eine Reihe von Wissensorganisationssystemen behandelt, von Klassifikationssystemen, Thesauri, Metadatenschemata bis hin zu Ontologien und Taxonomien.